Our appointment yesterday with the geneticist actually takes place over the television. This keeps us from having to go to Columbia and we can just see the doctor and talk to her without actually being in the room with her. Our appointment was the first one after lunch so we didn't have to wait to be seen. Upon entering, the secretary asked Payton to step on the scale. Immediately Payton started saying "no noise! no noise!". I stepped on the scale and showed her there wouldn't be any noise and although she was still against having to step up there she did it and weighed in at her usual 27 lbs. Once we had the weight she had to get her height and she was worried about the noise that would make as well. Once that was finished we were able to get her calmed down and started talking with the geneticist. The doctor was pleased to hear Payton's speech (the last time we'd seen her Payton was probably only saying a few words) and was shocked how tall Payton was getting (38 inches! I was suprised too!). We began discussing the anxiety and I was explaining to Dr. Miles how in the past I didn't realize how nervous Payton was because she couldn't tell me. But, now that she can talk I realize her poor sleep habits and violent tantrums all stem from anxiety. Yes, Payton obviously misbehaves, but her behavior is entirely different when it's caused by anxiety. She almost goes into a rage, which is quite scary and sad to watch. After much discussion the doctor proceeded to tell me that Payton has a delayed nervous system and that eventually her system will catch up and she will be able to take in and accept the environment around her. But, until then, we need to adjust our environment for her. Therefore, if she can't go to walmart, don't go to walmart (my dad went to walmart once and just tried to listen to see what noise could be bothering Payton and he believes it is the air conditioning/heating system). If Payton can't handle restaurants, then don't go to restaurants. I told her that was fine but Payton now has a younger brother and we are going to have to be able to go places for him. I don't mind her advice, but because she's never been in the situation, I don't think she realizes how secluded it feels. Even some family gatherings that we want to attend, yet have to say no to because it just doesn't work for Payton as far as eating out, attending ballgames, etc. She said Payton would eventually outgrow the anxiety and her nervous system would develop to where she can handle these situations. She also mentioned she thought Payton had an obsession problem to where she tends to obsess about things (baby elephants, windshield wipers, koen's nebulizer, etc.). I don't think I could ever get the doctor to realize that yes, she may be obsessing about it but it's because the noise hurts her ears. Even throughout the appointment there were several times she got real anxious and would say "what's that noise?". The secretary moved her coat and the buttons clanked against the table - it bothered Payton. Someone was talking outside the room, it made Payton nervous. Someone flushed the toilet in the bathroom and Payton gets scared. I don't understand how the doctor couldn't see from just the thirty minutes we were in there that the issue was anxiety. She kept thinking that Payton had adhd and needed medication for that. I disagreed and told her if she was to be on any medication it needed to be anti-anxiety. Therefore, she has decided to send Payton to a child psychologist and go from there. I wish so badly that before a doctor sees my child they would do a little bit of research on williams syndrome before trying to help us.
The afternoon ended well, though. We got to stop by my grandparents (my gpa had just had surgery yesterday morning on his hand and he looked amazingly well!). They can always bring a smile to my face - and Payton ofcourse gets spoiled rotten so she loves it too.