Thursday, July 30, 2009

Payton's BP

Payton's blood pressure has been giving her trouble for the past three weeks, but we've increased it again and hopefully this will do the trick. With this last increase, she's maxed out on this medicine, so I guess if she has any more trouble they'll start her on another medicine. Seems like that is really common in children with ws.

Payton's latest fascination has been Wii Music. Actually, all of us have had a lot of fun with it! Payton gets to direct choirs, bands, play a ton of different instruments, etc. She loves it! And, is actually pretty good at it :)

The other amazing thing Payton has done lately is put her head under water! I can't tell you how much private swimming lessons have helped her this summer. She now holds her head under water for a couple of seconds and Bob and I are beyond shocked. We're so proud of her!

The kids have had a really great summer so far. Koen LOVES jumping on the trampoline and riding his trike and Payton is usually chasing butterflies or trying to catch lightning bugs :) It's so neat because Koen really wants Payton to do everything with him. He can't say 'Payton', so he calls her 'Mimi'. With a little encouraging, Payton will generally end up doing what he asks her (like "mimi, jump?" "mimi, swimming?"). It really feels so good to see them doing things together.

Honestly, Bob and I could not have asked for a better summer. Things have fallen in to place really nicely. And, even when the bumps hit (like the past three weeks with an aggressive, sleepless little girl) we know there is an explanation....something has made her nervous/anxious or her blood pressure is up. Yes, the blood pressure does make me worry what's going on in that little body of hers but I'm so happy for some answers as to why sometimes her behavior is so aggressive. Thankful, thankful, thankful. :)

5 comments:

Noel said...

Totally know what you mean. Abi's BP is high and her mood will be off, but I know there is a reason for it...so it helps me to deal with it. Abi just got put on a med to increase her appitite but the side effect is it will make her tired. Maybe we can get some sleep around here!! I hope to come up with something about her BP too.

Michelle said...

I hope the increase does the trick!

Yay for progress on swimming! I really need to get Kayla into some private lessons, she doesn't keep her mouth closed when attempting to go under water!

Julie said...

I am so thinking about you right now. Noah's obsessiveness and anxiety have been worse the past few days. He gets really frustrated and hits me and kicks me. Is this how Payton got? Just feeling pretty wore out right now. Hope it doesn't last.

Tara said...

Oh my goodness, yes, Julie. SO exhausting - and people just don't 'get it'. I'll be thinking of you. we still have our days - but nothing like it used to be. email or call if you need to talk!

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