Peace

Bob's parents came down this weekend and we were so thankful they were able to. Bob and his dad went to the drive-in and watched Indiana Jones while Wanda and I stayed home and played with the kids. Koen was running his 102 fever again, but seems to be feeling better. He must just have some bug going around - or it could be his teeth. Who knows, but he's content if someone is loving on him and holding him so I can't complain. He was having a rough night Friday night so he ended up sleeping with his grandma Wanda. I was thrilled he got to spend time with her - even if it was sleeping - because we just don't get to see them as often as we'd like.

Friday on our lunch hours, Bob and I went to the cemetary to decorate Kayden's grave. Time goes by so quickly, it doesn't seem like it's been four years since we lost him. It's amazing how things shape and mold you in life. I just hope this little guy knows how much he was already loved! :)

We finally got Payton to sleep about 1am this morning (melatonin obviously didn't do it's job last night!). Sleep has been few and far between lately, but I am assuming she's on her 2-week kick and will get back to sleeping her usual (which isn't saying much) soon. She was be-bopping around this morning like she'd slept for 24 hours straight, so it doesn't seem to be phasing her a bit. She never ceases to amaze me.

I just finished reading the new book that came out "Another Day, Another Challenge" a biography about a child with williams syndrome. I thoroughly enjoyed the first half of the book and could relate to so much of it. My favorite was the tearing and shredding of paper. Just this weekend we were getting ready to show our house and I had just vacuumed. Sure enough, as I was in the other room, Payton grabbed some notebooks out of her desk and just tore them to pieces. It seemed as though this child really didn't outgrow the need for tearing paper, so I guess I won't be shocked if Payton is still tearing at 13 years old. For some reason, it almost relaxes you when you realize your child isn't the only one with fears and obsessions (that they think about so much they even talk about it in their sleep!). I know it's all anxiety and I appreciated that the author thought it was one of the most debilitating aspects of the syndrome. I agree - and never realized what anxiety could do to an individual. I will say, however, that it wasn't the feel good story of the year. I was hoping maybe for a good, cushy feeling when I completed the book and instead found myself laying next to my daughter as she sleep, praying for her and our family. I know everyone's story is different and every outcome is different but more than anything I think I learned that I need to make sure and fight for Payton and make sure she's getting the care she needs. I do still plan on passing the book onto my mother-in-law for her to read (my mom purchased one for herself and plans on passing it around on my side of the family). I think any knowledge any of us can receive-whether it's on another individual's experience or medical expertise-will only help us understand and help Payton more.