Monday, March 10, 2008

A new week

Last week I had to work late a couple of nights and Bob ended up having to work late one evening as well, so needless to say Payton did not have a good week. I think the hardest part of WS for me (so far) is the inability for her to adjust to a routine change. The evening Bob was working late my sister happened to come over and Payton was a mess. Screaming, crying, unable to control herself. Sara made the comment that it's one thing to hear about her having these meltdowns but it's a totally different feeling when you actually see Payton having the meltdowns (over something as simple as her father having to work late). Alas, it's a brand new week and I'm hopeful it will go much smoother for her. She's been up since 3:30am-so hopefully she will crash hard tonight. I really cannot fathom how she survives on such a lack of sleep. Melatonin helps her drift to sleep but even last night she was awake after just one hour of sleep. And, I feel guilty towards Koen because after being up off and on all night (okay, most of the night) with her it's hard to feel rested/rejuvenated to spend quality time with him. I'm so anxious for her to see the developmental pediatrician in KC. Surely he can give us some ideas for her sleep, anxiety, etc. For now, I'm counting down the days until her appointment.

6 comments:

Julie said...

I hope you soon get some answers that are helpful. Noah hasn't shown any signs of anxiety yet, but the sleep stuff totally. I get that we started a bad habit with putting him in bed with us, but his OT is the only person hearing me when I say that he goes to sleep okay on his own then wakes up. Something gets him awake. Even Scott thinks I am crazy. I just don't believe it is all habit. He just gets in goofy sleep patterns. I think we are on a up swing. Taking away naps seems to have helped. You are in my thoughts and prayers. I hate to hear about her being so upset.

abcmommy said...

I can almost feel how tired you must be when I was reading your blog tonight. Abbi hasn't shown the anxiety yet, or at least I haven't recognized it. But, I do know what its like to go without sleep. I hope Payton rests well tonight and don't feel guilty about Koen. You love both of your children and they both know that, and really that's all that matters. Quality time comes and goes as most things in life are cyclical but your love never fades. Rest up! I hope the days pass quickly and the doctors are able to help. Not only for your sake, but I can't help but think this lack of sleep WS children experience must affect so much more than we realize. Isn't it through sleep that our bodies grow and etc... Anyway, I'm rambling and my bed calls.

Mary

Heather said...

Ugh! I know how you feel. Exhausted. I know I said this before, but I am still catching up on sleep from the earlier days.
I have to say, your little man is just adorable. That picture below is sooooo cute, and the girls look like they are having so much fun on the horse! :) Hoping for some sleep for all of you.

Every minute counts.... said...

I really hope that he has some answers for you! I hope that you were able to sneak in earlier. I have an appointment in Aug I would give to you but I think your's was before mine anyway right?!
I hope that Payton gets some rest, and so does everyone else. I'm sure that daylight savings times falling so close to an already messed up routine, does not help matters either.
Don't worry about Koen. He will be a caring compassionate kid, like mine have become. I think a little bit of adversity has made my children better people. Maybe even more compassionate than I'd ever hoped them to be. They really amaze me, I'm sure Koen will amaze you too!

Noel

Penny said...

I hope you get some answers from the Dr. I do know how you feel.

Thinking of you....

Laura said...

I hope you can get some answers that will help Payton and take some of that anxiety away.

Always thinking of you all!