One thing I enjoy about blogging is hearing input from other moms of children with ws. They give me very good advice and I also realize how similar these children are to each other. This morning I was reading Nancy's blog about her son, Erik and my heart just ached for her. I immediately called Bob and told him he needed to read Nancy's blog because he just wouldn't believe the similarities.
Last night seemed to be about the same as the rest of the week. My father called and asked if we'd like to come out to dinner and I thought it would be a nice change for Payton - she could see a couple of her cousins and get to play with them a bit. My mom was aware of the week we had thus far and was hopeful being in a different place would help her have a better evening. Unfortunately she seemed to wreck havoc on everyone at her grandma's house as well. It really is hard not to feel sorry for her. She threw things, hit basically everyone there (if you walked by her or if she walked by you, you were apt to get swung at), and threw her fits. Then, as usual, wet her pants. Looking at her, I see a child frustrated and anxious. Anymore, I come to work and sit and worry about how she's doing. If I wasn't the one who carried the insurance I would quit my job and stay at home. The guilt I feel for not doing it is almost unbearable - but the fact is, with all medical problems associated with ws we have to have insurance for her or we'd be flat broke.
For any of my family and friends interested in reading Nancy's post, just click here. Thank you, Nancy, for being so open and honest in your post.